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Helpful Charities

Listed below are some helpful charities who can offer support and advice on sudden hearing loss and associated issues.

Hearing Loss Charities:

Hearing Link

Their vision: A world where everyone can enjoy life and participate fully and confidently, whatever their level of hearing.

Their remit is to ensure that people living with hearing loss can find information, specialist services, and social contact, in order to live well with hearing loss.

Hearing Loss Association of America (HLAA)

Their Mission: To open the world of communication to people with hearing loss by providing information, education, support and advocacy.

The Hearing Loss Association of America (HLAA) is the nation’s leading organization representing consumers with hearing loss. The programs and events they offer are designed to focus on you—the person. HLAA strives to give people the tools they need to live more successfully with hearing loss and to show them they do not have to face hearing loss alone.

The Royal National Institute for Deaf People (RNID)

The RNID are a charity working to make life fully inclusive for deaf people and those with hearing loss or tinnitus.

They campaign for an inclusive society, connect people to practical advice, and pioneer new treatments for hearing loss and tinnitus.

National Deaf Children’s Society (NDCS)

A leading charity for deaf children. They offer support to deaf children and their families – no matter what their level or type of deafness or how they communicate. They give expert support on childhood deafness, raise awareness and campaign for deaf children’s rights, so they have the same opportunities as everyone else.

Hearing Dogs for Deaf People

Hearing Dogs for Dear People train dogs to alert deaf people to important and life-saving sounds they would otherwise miss –  sounds that many people take for granted like the doorbell, alarm clock and even danger signals like the fire alarm. Being aware of these – thanks to a hearing dog – makes a real difference to deaf people’s lives, and can even save them. 

Hear the World

Founded in 2006 by Sonova Group, the Hear the World Foundation supports projects around the world enabling children with hearing loss to develop appropriate to their age. The foundation focuses on projects in low- to middle-income countries which give children with hearing loss access to audiological care. To this end, the non-profit Swiss foundation provides funding, hearing technology as well as on-site expertise to train local professionals. The expertise is provided by Sonova Group employees who work on a voluntary basis for the foundation.

Global Foundation for Children with Hearing Loss

Their mission: The Global Foundation for Children With Hearing Loss aims to make a direct and lasting impact on the futures of thousands of children who are deaf or hard of hearing around the world by providing them access to the early identification, hearing technology, and locally-based expertise they need to reach their full potential.

Tinnitus Charities:

British Tinnitus Association (BTA)

Their vision: A world where no one suffers from tinnitus.

The British Tinnitus Association are an independent charity supporting thousands of people who experience tinnitus and advise medical professionals from across the world. We are the primary source of support and information for people with tinnitus in the UK, facilitating an improved quality of life. We aim to encourage prevention through our educational programme and to seek effective treatment for tinnitus through a medical research programme.

American Tinnitus Association (ATA)

The core purpose of the American Tinnitus Association is to promote relief, prevent, and find cures for tinnitus, evidenced by its core values of compassion, credibility, and responsibility.

ATA is the nation’s foremost and trusted organization committed to finding cures for tinnitus and hyperacusis. Our commitment demands focus, determination, strategy and resources. ATA promotes synergy between dedicated medical professionals and researchers who work with and within the tinnitus community.

The Tinnitus and Hyperacusis Network

We have established The Tinnitus & Hyperacusis Network as we perceived there to be a need for a rapid access tinnitus service, using modern and evidence-based techniques for diagnosis and therapy.

Our aim is to support and care for people with troublesome tinnitus and hyperacusis in a person-centered service, helping them navigate a pathway towards restored quality of life. 

Note that appointments are private funding or self-referral. We do offer phone support and information but appointments are paid.

Vestibular Disorders Charities and Associations:

The Ménière’s Society

The Ménière’s Society is the only registered charity in the UK dedicated solely to supporting people with vestibular (inner ear) disorders causing dizziness and imbalance.

A national organisation, the Ménière’s Society has been offering information and support to those affected by vestibular conditions and those who care for them; as well as health professionals and the general public for over 30 years. 

The Vestibular Disorders Association (VeDA)

Their vision: We envision a world where vestibular disorders are widely understood, rapidly diagnosed, and effectively treated so patients can restore balance and regain life.

For almost 30 years, VeDA has been a highly respected source of scientifically credible information on vestibular disorders. Through our publications and online community, VeDA has reached literally millions of vestibular patients with critical information and support.

Acoustic Neuroma Associations:

British Acoustic Neuroma Association CIO (BANA)

BANA is the UK’s only national charity providing support and information for people affected by acoustic neuroma and the interrelated conditions, symptoms and effects.

Their Vision and Mission:

Our Vision is a world in which Acoustic Neuroma is no longer a life-changing experience.

Our Mission is to be a trusted, impartial and reliable source of information and support.

Our support service is based on community interaction (in person and virtually), linking patients throughout the country who might not otherwise have such contact. Given the relative rarity of the acoustic neuroma condition, patients often feel a sense of isolation in their diagnosis, and there is great comfort in communicating with others in a similar position, who understand the emotional impact and physical challenges those affected can face.

Note: If you have a suggestion for a charity or organisation to be added to this list, please send an email to carlysygrove@suddenhearingloss.support

Thank you.